活動報名 - 114年7月26-27日 2025 International Spinal Muscular Atrophy (SMA) Conference
活動日期：2025/07/26 ~ 2025/07/27
活動地點：城市商旅高雄真愛館1樓星光廳
兒神學分：7
兒發學分：0
報名開放日期：2025/07/01 ~ 2025/07/25
主辦單位：台灣小兒神經醫學會
活動內容：
申請學分：兒神7分、兒科醫學會4分
2025 International Spinal Muscular Atrophy (SMA) Conference:
Advancing into the Era of Disease-Modifying Therapies and Integrated Care for SMA
Date: 26 Jul 2025 (Saturday) 15:00-17:50
Venue: City Suites Kaohsiung Chenai (No. 1, Dayi St, Yancheng District, Kaohsiung City)
Directed by: National Science and Technology Council
Organized by: Taiwan Child Neurology Society (TCNS), Graduate Institute of Clinical Medicine, College of Medicine, Kaohsiung Medical University (KMU), Neuromuscular Diseases Translational Research Center, KMU Hospital
Co-organized by: Taiwan Pediatric Association, Taiwan Human Genetics Society, Taiwan Neurological Society, and Taiwan SMA Families
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Time |
Title |
Speaker |
Moderator |
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14:30-15:00 |
Registration |
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15:00-15:10 |
Opening Remarks |
Mr. Chien-Chih Chen, President of Board of Trustees, KMU; Prof. Ming-Lung Yu President of KMU; Prof. Kuang-Lin Lin President of TCNS; Prof. Yuh-Jyh Jong Professor of KMU |
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Keynote Speech (I) |
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15:10-15:50 |
Evolving SMA Care in Japan: Real-World Experience with Risdiplam |
Dr. Kayoko Saito Emeritus Professor & Professor of Special Appointment, Institute of Medical Genetics, Tokyo Women's Medical University, Japan |
Professor Yuh-Jyh Jong, Kaohsiung Medical University |
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15:50-16:00 |
Q&A |
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Keynote Speech (II) |
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16:00- 16:40 |
What We Can Explore from among Chinese Adult SMA Patients |
Professor Dai Yi Peking Union Medical College Hospital, Peking, China (Online Lecture) |
Professor Shuan-Pei Lin, MacKay Memorial Hospital |
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16:40-16:50 |
Q&A |
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Keynote Speech (III) |
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16:50-17:30 |
Advanced Gene Therapy of SMA |
Professor Perry Shieh Neurology and Pediatrics University of California, Los Angeles, US |
Prof. Wang-Tso Lee, President, National Taiwan University Children's Hospital |
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17:30-17:40 |
Q&A |
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17:40-17:50 |
Closing Remarks |
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2025 International Spinal Muscular Atrophy (SMA) Conference:
Advancing into the Era of Disease-Modifying Therapies and Integrated Care for SMA
Date: 27 Jul 2025 (Sunday) 08:10-12:00
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Time |
Title |
Speaker |
Moderator |
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08:10-08:30 |
Registration |
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Current SMA Treatment Landscape and Experiences Sharing (I) |
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08:30-08:37 |
Treatment Experiences of Adult SMA Patients at CCH |
Dr. Chin-San Liu, Department of Neurology, Changhua Christian Hospital |
Dr. Chin-Chang Huang, Department of Neurology, Linkou Chang Gung Memorial Hospital (LCGH) |
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08:37-08:44 |
Treatment Experiences of SMA Patients at TMU-SHH |
Dr. Yung-Ting Kuo Department of Pediatrics, Shuang Ho Hospital (SHH) |
Dr. Inn-Chi Lee, Department of Pediatrics, Chung Shan Medical University Hospital |
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08:44-08:51 |
Emerging New Phenotypes of SMA in Therapeutic Era |
Dr. Wen-Chen Liang, Department of Pediatrics, KMUH |
Dr. I-Ching Chou, Department of Pediatrics, China Medical University Hospital |
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08:51-09:00 |
Q&A |
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09:00-09:07 |
Treatment Experiences of SMA Patients at NTUCH |
Dr. Wen-Chin Weng, Department of Pediatrics, National Taiwan University Children's Hospital (NTUCH) |
Dr. Yung-Ting Kuo Department of Pediatrics, Shuang Ho Hospital (SHH) |
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09:07-09:14 |
One-Year Follow up of Neonatal Symptomatic SMA Treated with Zolgensma |
Dr. Inn-Chi Lee Department of Pediatrics, Chung Shan Medical University Hospital |
Dr. Wen-Chen Liang, Department of Pediatrics, KMUH |
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09:14-09:21 |
Impact of Newborn Screening on Early Theranostics and Outcomes in SMA: A Five-Year Taiwanese Experience |
Dr. Chen‑Hua Wang, Department of Pediatrics, KMUH |
Dr. Ming-Yuh Chang, Department of Pediatrics, Changhua Christian Hospital (CCH)
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09:21-09:28 |
Treatment Experiences of SMA Patients at TSGH |
Dr. Shyi-Jou Chen Department of Pediatrics, Tri-Service General Hospital (TSGH) |
Dr. Shuan-Pei Lin, MacKay Memorial Hospital |
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09:28-09:40 |
Q&A |
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09:40-10:00 |
Coffee Break |
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Keynote Speech (IV) |
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10:00-10:40 |
Optimize Treatment Strategy for SMA Long-term Management |
Prof. Perry Shieh Neurology and Pediatrics University of California, Los Angeles, US |
Dr. Kuang-Lin Lin, Department of Pediatrics, Linkou Chang-Gung Memorial Hospital; President of TCNS |
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10:40-11:00 |
Q&A |
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Current SMA Treatment Landscape and Experiences Sharing (II) |
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11:00-11:07 |
Treatment Experiences of SMA Patients at KTGH |
Dr. Kuo-Liang Chiang, Department of Pediatrics, Kuang Tien General Hospital (KTGH) |
Dr. Ting-Rong Hsu, Department of Pediatrics, TVGH |
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11:07-11:14 |
Treatment Experiences of Later-onset SMA Patients at CCH |
Dr. Tung-Ming Chang Department of Pediatrics, Changhua Christian Hospital |
Dr. I-Jun Chou, Department of Pediatrics, LKCGMH
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Intrathecal Approach in SMA Patients: KMUH Experience and Literature Review |
Dr. Wan-Ling Hsiao |
Dr. Tung-Ming Chang, Department of Pediatrics, Changhua Christian Hospital |
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11:21-11:28 |
Developed RULM-guided Motion Efficiency Recording Software to Verify Clinical Data of SMA Patients |
Prof. Jin-Chern Chiou Institute of Electrical and Control Engineering, National Yang-Ming Chiao-Tung University |
Dr. Shyi-Jou Chen Department of Pediatrics, Tri-Service General Hospital |
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11:28-11:35 |
Economic Burden, Health-Related Quality of Life, and Caregiver Burden for Disease-Modifying Therapies Among Patients with SMA in Taiwan |
Prof. Hui-Min Hsieh Department of Public Health, Kaohsiung Medical University |
Dr. Chin-San Liu, Department of Neurology, Changhua Christian Hospital |
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11:35-11:50 |
Q&A |
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11:50-12:00 |
Closing Remarks |
Dr. Kuang-Lin Lin President of TCNS Dr. Yuh-Jyh Jong Chair Professor of KMU |
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 | agenda.pdf |
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